A Journey That Started with Popping Pain

One patient’s path from debilitating palindromic rheumatism to long-term remission on the Antibiotic Protocol

“He was wrong — it worked!”

The moment the Antibiotic Protocol changed everything

Understanding Palindromic Rheumatism

Palindromic rheumatism is a rare, intermittent form of arthritis characterized by sudden, recurrent episodes of joint pain, swelling, and redness.

In 2006, I began experiencing joint pains that would randomly “pop” up in different parts of my body — the closest analogy I can give is popcorn! The pain struck without warning and radiated with intense force. These flares occurred anywhere from my ankles to my shoulders and typically lasted half a day before subsiding.

The Initial Diagnosis

My general practitioner ordered blood tests showing markers consistent with rheumatoid arthritis and referred me to a rheumatologist. I was advised to try NSAIDs (nonsteroidal anti-inflammatory drugs) for two months before returning.

While waiting for my follow-up appointment, I began researching on my own.

Discovering the Antibiotic Protocol

During this time, I joined a Yahoo chat group for people with rheumatoid arthritis. Someone mentioned Henry Scammell’s The New Arthritis Breakthrough, and I immediately bought and read the book.

At my next appointment, I asked the rheumatologist if I could try the Antibiotic Protocol (AP) described in the book. He agreed but added, “It probably won’t work.”

He was wrong — it worked.

Within a month of starting minocycline, I was completely pain-free. My doctor was surprised and pleased with my progress. Over time, I was able to reduce the dose and now take 100 mg of minocycline on Mondays, Wednesdays, and Fridays to maintain remission. My disease has stayed dormant for more than 19 years, and I have experienced no kidney or liver issues during long-term treatment.

The Rheumatologist’s Response

My first rheumatologist (now retired) was thrilled with the results. My current rheumatologist continues prescribing the antibiotics and has been very supportive.

When I asked why he didn’t recommend AP to other patients, he explained that many were already on stronger medications, making it difficult to “go backwards.”

But through research and patient communities, I’ve learned of many individuals who successfully transitioned off heavier drugs and onto the Antibiotic Protocol with excellent outcomes.

Discovering the Root Cause

Before my symptoms began in 2006, I had experienced digestive issues. Suspecting a parasitic infection, I tried raw garlic twice a day for three days — and the symptoms vanished.

Years later, during a colonoscopy, doctors found seven areas where giardia had formed “nests” in my stomach lining. Giardia can cause intestinal permeability (leaky gut), which in turn can trigger autoimmune responses such as rheumatoid arthritis.

This discovery helped confirm what had triggered my palindromic rheumatism.

What I Want Other Patients to Know

Be cautious with generic drugs.

Generic medications may change formulations over time, which can affect absorption and effectiveness. When feasible, consider brand-name versions.

Pay attention to food triggers.

While general dietary overhauls didn’t change my disease course, specific foods absolutely triggered flares for me:

• Citrus (especially oranges)

• Anything containing citric acid

• Barley

• Excess gluten

Everyone’s body is unique. If you flare, take note of what you ate — the clues are often there.

Be your own advocate.

Ask questions, dig into research, and explore your options. That Yahoo chat group led me to Henry Scammell’s book — and ultimately to a treatment that changed the course of my life.

Final Thoughts

Palindromic rheumatism can be unpredictable and frightening, but effective treatments do exist. The Antibiotic Protocol restored my quality of life, and my hope is that others will find similar relief through persistence, informed decision-making, and self-advocacy.

If you would like to connect with Patricia or other rheumatic autoimmune patients using antibiotic-based treatments to recover, consider joining Road Back Foundation’s private Facebook Group.

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Disclaimer

This is a personal patient story shared for educational and community support purposes only. It is not medical advice. Patients should consult a qualified healthcare professional before making any treatment decisions.