Patient Stories
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Every patient’s journey is unique, but no one should have to travel it alone. The stories shared here come from individuals living with a variety of rheumatic and inflammatory diseases who chose to explore antibiotic protocols as part of their treatment journey. Some experienced gradual improvement, others dramatic recoveries, and many found hope simply by connecting with others who understood what they were going through. These personal experiences are shared to educate, encourage, and remind you that every journey is different and should be discussed with your healthcare provider.
If you’re looking for more than written stories, we invite you to join the Road Back Foundation Private Facebook Community, where you can connect directly with patients in real time. Whether you’re just beginning to research antibiotic protocols, preparing to start treatment, actively undergoing therapy, or years into recovery, you’ll find a welcoming community ready to share their experiences, answer questions, and offer practical support.
Anne’s Story—From Life-Threatening Illness to Feeling Normal Again
If someone had told me 5 years ago that I would be diagnosed with a rare, life-threatening illness, I wouldn’t have believed it. If someone had told me a year later when I suddenly became severely ill that I would ever feel well or “normal” again, I wouldn’t have believed that either. Yet both are true. For me, as for many dealing with rheumatic illness, the road has been very rocky. But I now consider myself well again, and that’s thanks to AP.
Diane’s Story—From Rheumatic Fever to Finding Relief
My name is Diane and I live in Wisconsin. Most of my life I have struggled with infections. At age 12 I had rheumatic fever which later left me with constant pain throughout my body. That same year, I was injured at school when a boy pulled a chair out from under me. The pain became more intense and my disposition changed. I was a chronic complainer according to the family doctor. However later that year, he gave me a diagnosis of Fibrositis.
Sarah’s Story—When “Normal” Became the Best Word She’d Ever Heard
This is long, but I’m a writer at heart, sorry! Hi, I am 33 yr old mother of two from California. I had Lupus full blown about 7 years. Previous to that, I had eating disorders, (anorexia/bulimia) from ages 15-18, which I now hear did some damage to the immune system, brain, kidneys, heart, liver, stomach, teeth,etc. After that, my health went downhill, even though I recovered from the eating disorders. Those young girls don’t realize what they are doing, wish I had.
Rosemary’s Story—Believing in Recovery When No One Else Did
Writing the story has been very difficult, I just could not put it down on paper what I have experienced so will give a brief outline with the chance to update later. So thrilled and excited today to find that at last my immune system is clocking in after 3 years and three months of aggressive antibiotic therapy every day and no other supplement except antifungal and acidiphillous treatment for three years even though necessary I could not tolerate or manage the changes with them interacting with the A/P. Was concerned but had faith I would pull it all together eventually.