Patient Stories
Mixed Connective Tissue Disease
Every patient’s journey is unique, but no one should have to travel it alone. The stories shared here come from individuals living with a variety of rheumatic and inflammatory diseases who chose to explore antibiotic protocols as part of their treatment journey. Some experienced gradual improvement, others dramatic recoveries, and many found hope simply by connecting with others who understood what they were going through. These personal experiences are shared to educate, encourage, and remind you that every journey is different and should be discussed with your healthcare provider.
If you’re looking for more than written stories, we invite you to join the Road Back Foundation Private Facebook Community, where you can connect directly with patients in real time. Whether you’re just beginning to research antibiotic protocols, preparing to start treatment, actively undergoing therapy, or years into recovery, you’ll find a welcoming community ready to share their experiences, answer questions, and offer practical support.
Sankamithra’s Story—From Chronic Pain to Lupus Remission
My Primary was pleased with my labs and encouraged me to KEEP UP MY GOOD WORK.
Dani’s Story—From the Couch Back to the Golf Course
I would like to share a paper my daughter has written for a class she is taking in college. This is rather long, but I hope you enjoy. I want to Thank Road Back For helping us find Dr S. Our first real hope for our daughter was finding the Road Back website. We will be grateful forever Gary Hildreth. Bundle Up!
Diane’s Story—From Wheelchair Trips to Full Days of Activity
The first sign of change in my system occurred in February, 2004, and it was the onset of Raynaud’s Syndrome in my fingers, which makes the fingertips white and numb. It is often triggered in response to cold temperatures. My research informed me that there are two kinds of Raynaud’s, Primary and Secondary. Primary is the most common and not as serious. However, Secondary Raynaud’s may indicate a more serious cause, and blood tests are given to identify or eliminate potential causes.
Lisa J’s Story—A Navy Veteran’s Journey Through MCTD
I was always a healthy kid growing up. It seemed no matter what I did, I never got hurt bad. Not even a broken bone. When I was 16 I came down with Mono. I was sick for three weeks and thought I was going to die. I got over it and I seemed to be back to normal except I was tired all of the time.